Rare Disease Advocates Raise Important Awareness
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Join rare disease patients, caregivers and other health care advocates in Wisconsin to raise important awareness for rare diseases as part of Rare Disease Day®.
Speakers for the event will include legislators, patient representatives, advocacy groups, clinicians, researchers and WI biotech.
Many important decisions related to rare diseases are made at the state level, including newborn screening; support services to help families cope with complex medical needs; an environment that promotes innovative medical research and product development; and insurance practices that assure patient a...
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